Showing posts with label affordable health care. Show all posts
Showing posts with label affordable health care. Show all posts
Monday, September 9, 2013
Decision reached for now
As I sat worrying the other night about what to do with my Copaxone situation, it occured to me that if the choice had involved my anti-depressant, there would have been no choice. I would have just bought my med with credit and a prayer. It also occurred to me that my physical health is as important to me as my mental health. I would spend every cent in my arsenal in order to keep doing aerial dance. Once I had this realization, my choice was clear, start stripping (JK). Actually, I knew that I would contact the drug company to get help with my copay. I also decided that even if I could not get help to pay for my med, it is a more important expense than everything except food and rent. There really was no decision to be made: the choice was clear, if there is any chance that Copaxone is the reason I can do the things I do, I want to stay on the drug. I want to continue to fly!
Friday, September 6, 2013
Please advise
Fellow MSers, I really need some good advice right now from some people like myself who understand... I went to get my Copaxone today on my health plan from my new school district. When I went to the counter to pick it up the woman told me it would be $250.00. I thought I had heard her wrong but I had not. I decided not to buy my Copaxone today so I could go home to troubleshoot. I signed up for the same Kaiser plan I had in my old district where I only had to pay $10.00 copay each time. Apparently even the same plan is not the same in each district and does not cover the same stuff. I came home thinking maybe I signed up for the wrong plan but then I checked and I had signed up for the best one offered so even if I changed my Kaiser plan, my med will still cost me $250.00 a month. The problem is, at the moment I just don't have the money. So here is where I need help... Do I just toss the dice and quit the med? I have no way of even knowing if it helps me. It does not treat symptoms and it does not cure MS. I am feeling fine and I have not had a relapse in over a year (knock on wood). A huge part of me wants to take 6 months off and see what happens. Please send advise but please be kind and don't call me an idiot or anything (sometimes I notice folks can be militant about meds so please have compassion).
Thanks so much,
Denver Refashionista
Wednesday, December 19, 2012
The Real Dominican Republic Part 2
A couple things come to mind as I reflect on my brief trip to Puerto Plata. Before the daily hardships of the Dominican’s I met, whatever my worries or troubles are, they seem to melt to complete insignificance beside what I witnessed. Since this blog is titled “Living! With MS,” let me begin there. I am lucky to have some very decent health insurance through my employer, even though I only work at that job half time. I have a team of great doctors and the medication (Copaxone) that I take to slow the progression of my disease, at my fingertips. A visit to my neurologist costs $20.00. Monthly, I also only spend $20.00 for my medication. If I am hit with a large bill, I can make payments. I am not even sure who has health insurance in Puerta Plata. I also know for a fact that in order to receive treatment in the Dominican Republic, you must have complete payment in hand at the time of treatment. So yeah, while many folks might say I am unlucky to have MS, I say I am very fortunate to have affordable access to the care I need, whenever I need that care.
When I was in Puerta Plata, I also met my boyfriend’s best friend. When we were introduced, my boyfriend mentioned that his friend had helped him to survive several years ago during a dark time. Not only did his friend help him secure employment, he also found him a ride across the country to get to the new job. The thing that actually stuck out to me the most is when my boyfriend mentioned that his friend and his friend’s parents took him in and fed him when he had nothing to eat. Nothing to eat! Imagine that. I honestly can’t. I realized that in my entire life, even when I was very poor, I have never had to miss a meal or go hungry. I have never been without water or electricity and these things that I have taken as a matter of course, are not a matter of course at all for so many people in the Dominican Republic.
I suppose that here is where we could start the pity party but honestly, I suspect that the people I met in Puerta Plata would not even understand why I thought there was cause for a pity party at all. When I visited, I was fed and given a place to sleep although it was apparent there was really nothing to spare. They also threw me a giant birthday party and all I had to do was buy groceries. An enormous amount of food was cooked from scratch, and my boyfriend, an amazing man with nothing to spare, bought me a cake. Most amazingly of all, at the end of the night, they offered to pray for me. Pray for me? I already have everything I need but this was not the sort of kindness one says no to, so I asked them to pray for my health, and then they did. I closed my eyes and allowed their love and kindness to wash over me and honestly, there were tears in my eyes. I am blessed.
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