Hi Nadja, Great photos, thanks for sharing. Sorry I have not been visiting much recently. Since I have been spending more time sitting in my wheelchair I have not been visiting. Tonight I decided to visit as many blogs as possible. I just passed by to say hello. I hope you are doing well. Love, Herrad
She lives in Norwich, England and suffers from Primary Progressive MS. She has had it for a good few years now but as a child i didnt really notice, it is only as i have got older that i realised she was suffering - she always seems to have a smile on her face, which humbled me with her braveness! You reminded me of her! She is currently waiting for the treatment CCSVI in Poland - apparently it is not available in the UK yet but if tests are positive they may roll it out here.
As she says, this could be the beginning of a cure for this disease.
We have every finger and toe crossed for improvement! She is having the operation in August and she is uploading a lot of videos to show her condition before and after the op. She is rather technically impaired hence why I am contacting you, but she would love to hear from you and your experiences and if you would like to know more about CCSVI please please get in contact.
4 comments:
That's great. I will be walking with my team "MS Warriors" next Saturday in Reno, NV.
Hi Nadja,
Great photos, thanks for sharing.
Sorry I have not been visiting much recently.
Since I have been spending more time sitting in my wheelchair I have not been visiting.
Tonight I decided to visit as many blogs as possible.
I just passed by to say hello.
I hope you are doing well.
Love,
Herrad
Good to hear from you Herrad. I hope you are doing well.
Well done guys! Piccys look fab and it's always wonderful to raise money for such a good cause....
I found your blog when searching for similar blogs to my aunties and thought you might be interested in taking a look. It is called Bette Bravo (named after their dog) and it has information and lifestyle tips about MS and the new CCSVI treatment available
She lives in Norwich, England and suffers from Primary Progressive MS. She has had it for a good few years now but as a child i didnt really notice, it is only as i have got older that i realised she was suffering - she always seems to have a smile on her face, which humbled me with her braveness! You reminded me of her! She is currently waiting for the treatment CCSVI in Poland - apparently it is not available in the UK yet but if tests are positive they may roll it out here.
As she says, this could be the beginning of a cure for this disease.
We have every finger and toe crossed for improvement! She is having the operation in August and she is uploading a lot of videos to show her condition before and after the op. She is rather technically impaired hence why I am contacting you, but she would love to hear from you and your experiences and if you would like to know more about CCSVI please please get in contact.
keep up the great work
Kind regards and best wishes
Kate
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