One thing I have learned about chronic illness is that it can rob you of your feeling of independence. When I was diagnosed, I wondered where I would be without my husband or family. I still felt screwed but I felt like if things went south, I could count on those people to take care of me. In fact, I believed I needed to be taken care of. When I was scared and sick, it felt good to remind myself that I had people who would care for me if I got really sick and couldn't work. I was ceratin I needed that safety net. Now, my worst fears have been realized and I am all alone in this.
I am getting a divorce. I now have to pay half the mortagage on a house I can't afford. I'm responsible for my student loans and car payment. Financially, I am in dire straits. If I get too sick to work full time, I don't know what will happen. Most of my friends have turned their backs on me and won't even talk to me. I have had a falling out with several family members. I am truly on my own.
Do I feel despair? Hell no! I feel good. I'm creatively inspired and empowered. Overall, my health is good. I have found quiet happiness in my independence. I can do what I want, when I want. I have to work full time and now I'm working at the yoga studio several days a week in addition to my regular yoga classes I teach. I have been working 12-14 hours a day but I am ok. The only thing I crave is more alone time. This weekend, I plan to hole up and create art and writing. I will dance and do yoga. I will kick it with my cat. I will breath the air of independence and I will not be afraid. I can do this!
Today I am grateful to have this opportunity to be alone.
TISCH MS -- 18th Annual MS Patient Symposium
5 days ago