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Sunday, February 27, 2011

Inspirational video

One of my readers just sent me this video about a man my age diagnosed with MS. While his story does not seem all that extraordinary to me, (it being a lot like many of ours) I really like his outlook: the idea that each day is precious and must be lived to its fullest.

Check it out

http://byutv.org/watch/2151-203

Friday, December 31, 2010

Youth and MS

Yesterday I got a comment from a reader stating that she was diagnosed at age 13. I just checked out her blog and was impressed by her mission to create an MS forum for the increasing, juvenile MS population. Please check out her site and send her your support.

Nadja

Tuesday, December 28, 2010

Guest Post by Keith Hoffeild

Those who have MS can find it difficult to have hope in their lives. Suffering from a disease which has no known cure is something that is incredibly difficult, but it is always important to have have hope for the future. A new year is fast approaching and with it, there are promising new drugs and treatments being introduced which will make life far easier for those who are suffering with MS. 2011 shows signs of being an excellent year, as two new forms of MS treatment are being released at some point in the coming year.

The first MS treatment to consist of a ingested pill is due to become available at some point in 2011. There are two versions of the pill, developed by competing pharmaceutical companies. Fingolimod is the name of the pill developed by the company Novartis. This pill is taken once a day. Cladribine, developed by the company Merck, is another treatment of MS in the form of a pill. The pill is taken in a course, with typically forty pills taken through the year. Cladribine already sees use in cancer treatment, but only recently have researchers discovered the treatment can be used for sufferers of intermittent MS.

Each of the two drugs have been subjected to studies at the University of London, and have both shown promising results. The current treatments for multiple sclerosis are injected into the body. These injections can be painful and produce undesirable side effects. Also, these injections are expensive and time consuming, as many injections are needed throughout the year. Cladribine was used in a study involving 1,300 MS patients, and the results showed that those who received the pill were approximately 56% less likely to have a relapse than those who did not. Fingolimod was used in a study which involved 1,033 patients, and the rate of relapse occurrences in those who received the pill was reduced by about 60%. The professor who oversaw the cladribine study did concede that not much was known about the long term effects of these medications, which may be a future issue.

Both of these drugs were able to reduce MS progress in a third of all patients, effectively stalling the disease. Unlike the intravenous treatments such as betaseron, and avonex, patients treated with these pills experienced no negative side effects whatsoever. The MS Society claims to be trying its utmost in making these pills available to MS sufferers as soon as possible. With such promising steps being made in the treatment of MS, and other diseases which plague mankind, online schools for medical are available for those who want to help the fight against these dreadful illnesses, but cannot find the time to attend classes.

Studies are currently being undergone to determine if vitamin D can be used as a method of MS prevention. It is believed vitamin D plays a role in the pathogenesis of MS, which is why there is a possibility it may lead to some form of treatment. One study has reported that low dose naltrexone has shown positive effects on MS patients, but no further evidence has been released since then.

Not only are new methods of treatment being developed and introduced, but new forms of diagnosis are being researched for implementation. Multiple sclerosis is very difficult to diagnose due to the many symptoms that the disease can cause. Some patients present completely different symptoms, making clinical diagnosis nearly impossible. Anti-myelin anti-bodies are being studied in order to determine if they can be used as biomarkers of the disease, but little success has been reported from the studies thus far.

Bio: Keith Hoffield has a degree in biology a a minor in creative writing. He loves to share his knowledge by working with onlineschools.org

Sunday, December 12, 2010

What a Difference a Year Can Make

I was just reading over the blog entry I wrote for my birthday last year as I reflect on where I am today (on my birthday again). While most of my physical circumstances (job/s, domicile, relationship status etc) are the same, I feel very different.

At this time last year I was physically and mentally exhausted. My life felt bleak and lonely and I was almost always anxious. I was in a really bad place.

Things have really changed. True, I'm still tired and I still work all the time but I don't feel overcome by my life. When I wake up every day, I don't feel like I can't face the day. I don't dread my job or even the work I have to do on the weekend. I am not lonely anymore and I am not worried about my finances. For the first time in several years, I don't feel an urge to look for a new job.


I still don't get out all the much, but now when I do, it's because I want to and not out of a sense of obligation. My life at home is much better too. I have a roommate and my cats to keep me company, and my new kitten is like the child I never had (much less work but tons of love and companionship).

To sum it all up, I feel good. Now, off to enjoy the day :)

Monday, October 25, 2010

Research

My roommate is currently doing some research on a couple of issues related to MS and I am seeking my reader's help to complete her study. Please post a response to the following questions ASAP if you can and/or are willing.

1) What age were you diagnosed at?
2) What state were you living in at the time your were diagnosed?

Thanks so much,

Nadja

Monday, October 4, 2010

My little star


Well the kitten is a hit.

She is now about ten weeks old.

My nephew named her Anabeth before I met her so that's her name at the vet. My sister calls her "Baby Racoon." I have named her Teacup "TC" because she was teacup-size when I got her. In the picture she is in front of my roommate's bunny cage with my other cat Apollo. The bunny in the picture is named "Friendly."

Sunday, October 3, 2010

After a long hiatus...



I thought I would swing by my own blog to see what was happening. Apparently some people are still reading this thing (LOL).

Life's good but I have been very busy for quite some time. I would like to say that I have been off writing the next Great American Novel or travelling around the world but I have just been working all the time.

Luckily, I am enjoying the school year. I am teaching fun classes and creating new curriculum. I have a new boss and generally better (or at least nicer) students this year.

A few weeks ago I got a reminder to slow down because I had my first exacerbation in over a year. I had to do a large dose of Prednisone (500 mg a day for 4 days). When I was done my vision cleared up but the steroid withdrawal also made me sick. Between the exacerbation and the steroids I had about two weeks of skull pain, vertigo and nausea but I was able to keep up with my life by just resting more. Now I feel good again!

This was a good learning experience. It reminded me not to push too hard and to draw some boundaries with work. I am coming home sooner after work to rest. I am still doing some work at home but I'm not spending as much time under florescent light and that really helps. I have noticed that the lights make me feel much worse. I have also been creating systems so I can work more quickly and efficiently. Best of all, I am just slowing myself down by pausing to breath and meditate.

I have fallen madly in love (with my kitten). She gives me a reason to come home and a reason to lay around in bed so we can play. She makes me smile.