I will keep this brief-- I am exhausted. After almost two weeks of kidding myself that just rest would make me better, I finally admitted to myself that I was having an exacerbation. I woke up from a dead sleep at 4 a.m. on Tuesday morning and everything was spinning. I could hardly see or walk. I was filled with panic. Had I waited longer than I should to start some steroids? I finally took some Klonopin and it calmed me down and diminished some of my dizziness so I could sleep again. Before I drifted off, my nerves gave me strange signals. Sometimes my arms felt burning hot, sometimes numb. I promised myself that when I got up, even if I felt better, I would call my neurologist.
I called him yesterday and they had me come in for a urine analysis to check for UTI before they would give me steroids. Today they finally gave me a prescription for Prednisone. I have to take 500 miligrams for four days but then I am done. I realize I could have asked for the IV but I did not want to be tied down (literally) so I took the Prednisone. I was not happy to resign myself to this treatment, knowing that it makes me sleepless and crazy but I also realize I start work on Monday and I can't wait for rest to do its work.
I knew on Monday that I was in trouble. I have felt achy and ill since I came back from California. I have been dizzy and nauseous a lot of the time and my vison has been blurred. Over the weekend, I got so dizzy that at times I walked crookedly and standing up made me want to hurl. Monday was different though. I still was dizzy and periodically numb in my arms, hands and feet but emotionally, I was a mess. I think that was the true indicator that I needed help. I had things on my mind but I was far more upset that the situation warranted. I cried most of the day. I really was not surprised when I woke up to severe vertigo and blurred vision. My emotions had already warned me that an exacerbation had already begun.
I imagine the good news is that I will start work feeling full of energy. Since the dose is only for a short time, I hope to experience a minimal crash once I finish the drugs. I am also hoping this will hold my symptoms in check until I can start my Copaxone. I am glad that my doctor spared me a lecture about how I should have already started my DMD. This exacerbation reminds me why the Copaxone is probably important for me at this stage.
Today I am grateful that I can still drive and live my life through all the inconvenience of my current situation. I am also grateful for the love of my husband and my pets who have been so supportive lately.