I am starting to feel a little better now. The night was a tad rough, a little ummm… backed up. I know, TMI.
Anyway, despite the challenges, I am healing a little every day. Now I would love to start corresponding with a bunch of other MS patients and their families in the coming weeks. I am a very science-minded researcher when I set myself to a task and now that I have done some of the philosophical processing, I'm ready to start researching my disease.
In education, when we tackle a topic, we start with an "essential question," and then the explorations our students complete and the assignments they do focus around those essential questions (at least when we do our work well). I am now about to embark upon answering my own new "essential questions."
Here they are: 1) What causes MS (scientifically), is there quantifiable, valid data even available?2) Can MS be cured?3) Do "interferons"and other meds help, which seem to have the best results, is there a good body of data supporting one medication or another?4) Can MS relapses be averted or minimized by life-style modifications, holistic approaches, exercise and meditation?5) What regimen of diet and exercise works best for the majority of MS patients, or is it really about each individual finding what works for them?My vision is to use my blog and email to create a world-wide network of MS patients and their families freely sharing information and collecting data. I would love to know how others are managing their disease and would love to be put in touch with as many MS sufferers as possible. Please feel free to share my blog with anyone you think may benefit or respond.
Thanks,Nadja Yse-Stringer
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6 comments:
Excellent approach. Knowledge is power. You are not powerless, you live in an unprecedented age of information exchange. The experience of other MS patients in years past, is not your experience. With the degree of information available, your experience is completely uncharted.
Well, OK. As I told you- you and Matt are two of the most poitive people I know. And I said- you can beat this thing. But you already have! Rather being a victim, you've become a student. You've incorporated this thing into your experience of existence and so,by that, you've overcome it. And that's a lesson for all of us. You are a great teacher after all!
All my love to you two.
Kim
Interestingly, I just received an email announcing a job posting at the National Multiple Sclerosis Society. Seems like a bit of a synchronicity, so I'll re-post it here, just in case there really is some connection or interest...
Full Time Graphic Designer
The National Multiple Sclerosis Society
The National Multiple Sclerosis Society seeks a full time Graphic Designer here at the Home Office. Candidates should have 2-4 years professional experience in print and web design and creating externally facing materials in a fast-paced corporate environment.
Responsibilities include: Designing print materials like brochures, advertisements, annual reports, booklets and other materials provided to or sold to Chapters. Designing online banners, web pages, online newsletters and e-blasts. Working with the Manager of Creative Services on national ad campaigns, logo development, and photo shoots.
Must exhibit strong collaboration with a variety of cross-functional project leaders, and the ability to organize and manage the project to the delivery date and expectations of the stakeholders. Also includes the collaboration with external creative resources that may include photographers, contract designers or freelance illustrators, and the ability to convey and ensure Society-appropriate design throughout each project.
Technical Knowledge: Photoshop, Illustrator, InDesign, Quark, Dreamweaver, Flash, and knowledge of standard production tools, pre-press procedures and print/web publishing programs is necessary.
Interested candidates should contact:
Mark Serratoni
Manager, Creative Services
National Multiple Sclerosis Society
900 South Broadway, 2nd Floor
Denver CO 80209
tel + 303 698 6100 x.15178
fax + 303 698 6120
JOIN THE MOVEMENT
http://www.nationalMSsociety.org
Thanks George
General Striker, you're becoming a softy in your old age (lol)
Brian, this seems serendiptious
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